I emailed and phoned crazily on Monday 4th trying to
find out when I could schedule my first chemo in, but they were closed this
day. I was frustrated, impatient and slightly depressed.
I was not in denial, I just didn’t understand it was cancer. I felt so
healthy, everyone told me I looked great, I had selfie after selfie on FB, I
drank, I ran, I did my crazy 1 hour session PT with Sun. I slept but more
broken than usual. I had an appetite like a stockman during cattle season.
So first Chemotherapy was 8th January. 930am, you are
weighed, taken to the one of many reclining chairs in the room it’s not
sterile, it’s purpose built but I didn’t feel like I was sick. The nurses were
incredible and put me to ease immediately. You choose your own chair, I always
get the one by the window, and you set up for the hours to come, laptop, phone
with music loaded, noise cancelling headphones, socks (super important) and
something very comfy to wear, I made a few wardrobe mistakes before realising
this was important, and then I decide do I want someone there or do I just want
to do this by myself and have some quiet Mez time.
It was not what I expected, it was pretty uneventful, scary to watch the
amount of ugly chemicals they are pumping into you but not as bad as I
expected. Each ‘chemo day’ is on a Friday, then I go treat myself to a nice
grilled fish and glass of wine somewhere nice in Sydney and then go home to
relax. This makes my day feel like there is something I’ve done for myself
also. You start to feel pretty rubbish and mouth starts to turn pretty much
during chemo.
I finally moved to the Porta Cath from using my arm veins in 25th February.
I tried but the arm pain was way too high. I admitted myself to emergency room
and underwent a full day of scans and checks and none of the Dr’s could tell me
what it was and really all I wanted were strong painkillers so I could survive
the day, but I visited Dr Arthur (my haematologist) the following day and he
said we should move to the Port in the chest and well done for trying.
The next 2 weeks went like this every time pretty much the same…
· Mouth taste starts going on
chemo day
· Day 2 – Tired, mouth getting
worse and food not quite right that evening
· Day 3 – mouth starts to get a
little bit sore on the side of your tongue and you know what’s coming
· Day 4 – liquids pretty much,
custard, custard, soups but not too hot, shakes with fruit in them blended,
protein shakes, vegetables and minced meat with gravy was a great one I had
completely blended of course. Coffee is gross. (that sucked for a caffeine addict
like myself)
· Day 5 – body getting quiet
tired, mouth still sore and slowly gets worse, talking very exhausting
· Day 6 – pretty exhausted,
miserable feeling – I ended up taking this day off every time so I could break
up the week
· Day 7 – Feeling slowly better
with the mouth, but your body starts to ache now
· Day 8 – aching body still
· Day 9/10 – for me this is the
following weekend, so sat and sun I would be fairly good and back on red wine
so I would socialise now if I could but not all day. Its too tiring.
· Day 11 – 14 – Feeling
remnants of sore body and fatigue but nothing major, however this was my early
on experience, later on I would get more tired so I had not set expectations
with myself or those around me very well as I didn’t have much of a clue what
was to come.
· Day 15 – Chemo Day!
TIP? Take vitamin B tablets, helps with energy and sore mouth ulcers,
rinse mouth out with bicarb soda, mouth wash with no alcohol, eat something
yummy the night before and day of chemo day, it made me feel better, so if you
are a foodie – this is a great way to feel good while you can.
I lost 5 kg since I started treatment, days of sore mouth meant I lost
kg’s instantly.
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