I knew there was something I loved about this ward, 2 rules
the nurse said. 1. No flowers, 2. No children under 12. Um…I think these rules
were written for me personally. People always send too many flowers, even
though when I get them I love them, but logistically they are annoying sometimes plus they seem just something people react to much too quickly. Depends on my mood i guess. Tulips are different, there is always a time and a place for Tulips!
I’ve used every last gig of my phone plan streaming
Housewives of Melbourne, so Telstra I’ll need some more pls! HCF paid for my
tv, but I can’t say I watched much of it J Not a lot to choose
from except the lego movie on repeat. ‘everything is awesome’ (thanks to Sez
visiting) is all I can hear now.
I texted Gary early who is at the airport, so bummed I won’t
see him when I get home until Thursday evening. Having a few days to himself at
home I hope has been at least reprieve from a few things.
I was actually pretty excited about breakfast this morning,
I think that’s why I was up and awake from 5:30am, ABC news on, coffee from the
patient kitchen ready for Muesli AND Scrambled eggs. First time I ordered a
hot breakfast. The things you get excited about right J I quickly got unexcited about the eggs when I got them.
I popped out of my door at the end of the corridor, there is
a window overlooking St Leonards. The window is so warm, I leaned against it
and drifted out of body for a moment. Quickly coming back as someone pushed
their Nurse Call buzzer which rings out everywhere.
I headed up to cardio unit for an echocardiogram – the machine
shut down from overheating towards the end, so he had to blow some dust of it
and power it back up. Then nearly pulled my port out my chest taking the chest
pads off. Painful moment avoided. They found some fluid on the lungs but the
heart seems fine. Heart murmur still there, my littles spastic valve trying to
beat away! So the registrar said they will prepare me going home if Dr Arthur
is happy after an x-ray of my chest.
Ok, so I think I horrified my respiratory Dr, and the
Haematology Registrar, both thinking I’m mad for wanting to run
7km in 2 weeks’ time. Although advising, your body will tell you, I’m Mez and
my body only tells me ‘do more’, so I’m going to do something that makes me
teary even typing it….I’m going to take the Dr’s horrified face, implant that
into my memory combine it with the memory of this entire week just gone and
that I have re-prioritised AND pull out of the SMH Half Marathon. I’ll be there
as a support person of course and wave the #teammez flag as people run past. I
hate doing this, it was something I really wanted to prove to myself that I
could do during Chemotherapy, when a lot of people can’t do in normal healthy
life. I’m very disappointed. In my body, in my mind and I hate that I got
Cancer!
*Warning: Going into depression mode for a minute*
I need to find my purpose for this whole thing….that will
put me back on track. I think I’ve exhausted google images “inspiration for
people with cancer”. Now to eat the words I’ve posted on FB and Instagram!
I finally escaped this place at 6pm - after waiting 2 hours
for my take home meds, unexpectedly eating dinner, and dying to get into the
fresh air and cab home.
I now have 20 pills to take daily for antibiotics, steroids,
another antibiotic, folate tablets for vitamin B, panadol.
Thank you to Sez for being home for me tonight and looking after Stewie, i really don't feel well.
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